Man with kidney disease stops in KC-area during trek across US

SHAWNEE, Kan. — Just one guy is traveling cross-region on a bicycle to support come across a get rid of for kidney illness. On Wednesday he stopped in Shawnee, Kansas, wherever he was recognized for his efforts.

Glenn Frommer thinks action drives hope. He’s biking 5,300 miles throughout the state to increase awareness and investigation funds for polycystic kidney sickness, or PKD.

“It’s untreatable, incurable, progressively worsening genetically inherited disorder,” Frommer stated. “It’s just going to get even worse.”

Frommer’s situation has regrettably gotten worse. He was identified with PKD in 2014. It was a gut punch for him and his spouse and children.

“Your healthy kidneys are about the measurement of a fist. My kidneys are a few and a half instances the measurement of that, just filled with cysts,” Frommer explained.

The disease is not slowing down, but neither is he. The 60-calendar year-aged desires to speed up the tempo of research.

“Now we at least have medication that slows the condition, but it’s not sufficient. We require superior medications for the affected person population,” Frommer claimed.

Dr. Stephan Parnell, a researcher at the College of Kansas Health care Heart, claimed the dollars Frommer raises will right impact the overall health system’s Kidney Institute.

So significantly, they’ve topped their $500,000 goal. Now they are going for $640,000 before they access the final spot — Cape Cod by Sept. 1.

“It would make all the difference in the globe,” Parnell claimed.

Regrettably, Frommer stated the PKD Foundation only has more than enough revenue to fund 6 or seven grants a year, which is only about 10% of the requests that come in. Donations from his tour could insert 4 a lot more grants.

By means of the chilly passes in Colorado to 100-degree temperatures in Kansas, Frommer stays inspired by the individuals and people he meets together the way.

“When the alarm goes off at 5:30 every single early morning, I do not dread it. I get up and get all set on the bike,” he claimed. “It’s lifestyle affirming.”

Frommer and his wife are in Kansas right up until Friday. Look for their RV, lovingly regarded as the “Blue Whale.”

You can also support them arrive at their objective by donating here.